Practically speaking, this is the most beautiful day in our entire month. This is the day we know as Tysabri, or Infusion Day–but I call it Miracle Day, Grace Day, and Rejoicing Day.
We pack for this occasion. We bundle Natasha’s doggy-bed into the trunk, fold battery adapters and miscellaneous cords into laptop cases, and bring along Gatorades and bottled water. We remind each other not to forget iPads and iPods, speakers and digital voice recorders. And above all, we always pack Naomi’s Bible.
We drive the fifteen minutes to the hospital, harness Natasha, and make our way across the parking lot, past a musical and fragrant water fountain if it happens to be summertime, through the double doors, and toward the medical center’s coffee shop. This is a tradition, and Infusion Day sans mochas would be akin to traipsing about an amusement park all day without going on any rides. So, we deposit our fifty pounds’ worth of personal property on tables and chairs in the coffee’s dining area, then turn our attention to the business of investigating pastries–an earnest activity indeed. There is that delightful cinnamon roll, and that delicious-looking apple turnover, and an overly-sappy brownie. Over in the little refrigerator are containers of hummus and bottles of iced tea. Oh, the options! But today is a bagel day. A toasted-sesame-seed-bagel, cream-cheese, and cinnamon-infused-chai day. A mocha day for Naomi, and a latte day for Hannah. Sadly, her latte is not as delectible as our beverages… That isn’t part of our tradition! It is Hannah’s idea to infuse the steamed milk with cinnamon before adding chai, and it is the best thing she has ever done for our special custom. The only problem: I can’t request this sort of thing from any other coffee establishment, because the cinnamon-infused-chai experience now belongs to the hospital, and only to the hospital!
Between her toasting and steaming and blending, the barista banters back and forth with us. It’s not a bagel if it’s not toasted. Perhaps it will warm up soon–she certainly hopes so. Does enjoying a varietey of coffee syrups pose a problem because it encourages unhealthy consumption, or is it a blessing because it means you have a zest for life? Oh, and by the way, how is our day going? “Very well,” Hannah says just as I exclaim, “Blessed beyond measure!” It is just this sort of comment that endows the day with such exquisite joy and peace–the freedom to describe our lives as blessed beyond description, and to know in our hearts that it is true, even if our exuberance does surprise our barista a bit.
Then it’s past the outer waiting room, down a single corridor, through a large set of doors, and into the infusion center proper. Today, we have the room to the immediate left as you go down the second corridor. And on this lovely day, we are all ensconced in our own special places. The room has two infusion chairs, and I sit in the one in the corner closest to the wall–quiet, separate, isolated, perfect for writing and reflection while observing the goings-on from a distance. And praying, of course…
And those nurses! They settle Naomi in the other infusion chair, provide all three of us with warm blankets, hand us chilled bottles of water, plug in adapters when we are too encumbered to reach the electrical outlets ourselves. And it’s not out of any form of professional obligation–they really care. They ask about Jedidiah’s life, about Hannah’s CNA certification, about what I am studying in the Word, and about Naomi’s heart as well as her heart rate. It is beautiful.
Nurse Steadfast is working with us today. Nurse Song-in-Heart is usually Naomi’s nurse, but she is off-duty at the moment. Nurse Steadfast and Nurse Song-in-Heart are best friends and enjoy talking to us about the things of God. They both have such audible joy deep within, love for the Lord that shines through their voices, that I often confuse them and call one by the other’s name. They seem to take this as a compliment.
Nurse Steadfast begins the IV. As she swabs Naomi’s arm and searches for a vein, she inquires as to how Jedidiah is doing–by way of distraction, I suppose. If it were my arm she was scrubbing, I would have no patience for something like that and would insist that we all keep silence until the IV was firmly in place–distraction works only to irritate me. However, Naomi is different and I admire Nurse Steadfast’s keen ability to make an unpleasant procedure like this one less anxiety-inducing. While the two of them chat and prepare, I take this moment to pray. I pray that the IV be placed the first time and that Nurse Steadfast be given wisdom and guidance, and I ask the Lord that Naomi’s Tysabri might be used to strengthen her body and treat her MS. When I remember, I pray that the rest of the day be free of the fatigue and headache that are often side effects of this medication. Actually, prayer is the primary reason I even come to these appointments. The coffee is delicious, the family time is beautiful, and the Bible reading we do is downright joyous, but I know I can actually serve by petitioning the Lord on Naomi’s behalf. I may not be terribly adept at guiding Naomi’s IV poll through the corridors or getting everyone situated comfortably, but I can pray, and I come just to perform this little service before the Lord. Today, the IV placement goes well and Naomi is hooked up to a line within five minutes. Praise Him!
Nurse Steadfast and Naomi continue to talk. Hannah intermittently jokes with Nurse Steadfast and plays with her gidget-gadgets–you know, cell phone, iPad, electronic toys… I write, half-listening to the swirling conversation around me and jumping in to add the occasional joyful and generally unconventional comment. We drink coffee and eat bagels, while a sense of God’s presence continues to mount in me until I can scarcely contain it. If Jedidiah had been here, we would discuss his blessing of a job. Happily, he is not here, so we can discuss his birthday and the seafood restaurant to which we plan to take him. Yum!
Finally, Nurse Steadfast gets a telephone call that necessitates her going to see another patient. Then comes my favorite part of Infusion Day–not the most important part, or my reason for being there, but my favorite part all the same–for it is then that Naomi takes my digital voice recorder, opens her Bible, and begins to read. We’ve read from John and Hebrews, Genesis and Psalms, but today is almost the best of all because we are in Mark. Now, Mark is special because there is a sense of immediacy about it and because so much of Christ’s ministry is discussed in a single chapter. Today, we are in Mark II, and all that Jesus did and said is downright overwhelming. As I listen to Jesus’ healing of a paralytic, of His words on fasting and concerning the Sabbath, and of His calling of Levi, I am reminded of the absolute glory, the great and overwhelming holiness of this Savior I serve. Without ever really being able to articulate why, I find myself in tears, raising my hands before the Lord, worshiping Him with all my heart as though this is the first time I have ever heard anything about the Trinity. It is like the first day the Lord ever taught me to praise Him, and it is all I can do not to leap out of my seat and dance with all my might, crying, “Hallelujah! Hallelujah!”
Naomi finishes reading and a profound hush, a peace-saturated silence, fills the room. I try to explain what this has meant to me, but there are no words. Just then, Nurse Steadfast returns and we resume our conversation with her. This time, all of us are a bit more reflective. We pull her in to our Bible study, discussing Lamentations and the faithfulness of God, the initial motives of the Pharisees and Jesus’ interactions with them and, above all, God’s endless and abiding love. I remark that we sometimes do wrong because we forget to what great depths we are loved by the Father, Son, and Holy Spirit. I then spend several moments trying to explain what God has been teaching me over the past four days–that He has been speaking to my heart through Colossians 3:3. Oh, it is marvelous!
I begin this post to the tune of several songs that Naomi and Hannah are playing on the iPod station. They’s definitely a bit more percussive than I tend to find soothing, but they do bespeak God’s mercy and somehow seem to fit this impromptu praise gathering. There’s something here, in this moment of adoring the Lord of Hosts, for every last one of us, including Nurse Steadfast.
What is the point of all this? Why am I examining what is really a rather normal day in such vivid and minute detail? Because, my beloved reader, only the Lord could have brought all of us this far. You see, Tysabri is a very intensive medication and we were all initially reluctant for Naomi to take that step. I shan’t regale you with the ins and outs, for they are not very edifying, but this was not something that any one of us was really willing to embark upon. Those first few treatments were disconcerting and somewhat bleak. There was no Bible reading, no worship, a lot less prayer. But then, two things began to happen. First, the Lord began to change our hearts–to cause us to trust in Him despite fear, pain, and anguish. Then, too, the Tysabri was working and we saw that we had less to fear–or, should I say, we saw that the Lord really did have us? So then, gradually, we began to open our hearts to what God was doing and I specifically began dedicating these infusions to His service. Then, Nurse Steadfast and Nurse Song-in-Heart entered our lives… Oh, it was all Him!
And so, this is my testimony as to what God has done–how far He has brought us, from mourning to jubilation. All glory be to our Shepherd, our Healer, our Comforter…
Addendum: “To God Be the Glory” is that exquisite hymn which proclaims the Gospel in so many perfect verses. Usually, only three verses appear in hymnals, but I have heard that Fanny Crosby actually wrote ten. If anyone has access to the other seven, please let me know, for I have been unable to find them. The best versions that I have found are by Brentwood Music and the Discovery Singers.